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My situation is emblematic of a broader problem faced by Autistic people: There is so much public misunderstanding of our condition and, in spite of some progress, nowhere near enough ways for us to advocate for ourselves.
Recently there has been highly welcome indignation and pushback against the quackish treatments and attitude of stigmatization advocated by President Donald Trump against Autistic people during his infamous September 22 press conference. Some of the most forceful criticisms have been made by Autistic individuals and Autistic-led organizations. It has also been satisfying to see a major political figure like Illinois’s Democratic Gov. JB Pritzker offer enlightened rhetoric on the subject. In an executive order in May designed to protect Illinois’s Autistic persons’ privacy from Health and Human Services Secretary Robert F. Kennedy Jr.’s proposal to create a nationwide registry of Autistic persons, Pritzker stressed that “autism is a neurological difference–not a disease or an epidemic.”
In recent years activists and writers like Eric Garcia Jr., Temple Grandin, and the late Steve Silberman have pushed back against the stigmas attached to Autism by Trump and RFK Jr.: that Autistic people represent a diseased, anti-social segment of the population that are in need of a “cure” for their condition. Silberman’s best selling 2015 book NeuroTribes was a particularly notable contribution to the public discourse, describing Autism not as a mental illness but a normal and healthy variation of human neurological development. Writers like Silberman have stressed that Autistic people have the potential to use their unique intellectual and emotional gifts to make valuable contributions to the broader society—if that society is willing and able to offer accommodations to allow Autistic people to thrive.
Unfortunately, while the relatively enlightened approach toward Autism outlined above has made some progress in positively impacting public understanding, that progress has also been relatively limited. That limitation is illustrated perfectly by the Trump administration’s focus on finding a “cure” and other aspects of its harmful, reactionary approach to Autism. The Trump administration’s approach to Autism is part and parcel of its punitive and uncaring approach to underprivileged Americans in general, as demonstrated by its draconian gutting of an already devastated American welfare state.
Some of the most serious problems in Autistic policy in the United States run much deeper than Trump’s cruelty and ignorance or the medical quackery promoted by RFK Jr. One of the most deep-seated problems relates to Autistic adults in the job market. The unemployment rate for Autistic adults in the United States is extremely high—85% according to one estimate.
I have direct experience with the subject of Autistic adult employment. As an adult in my early 30s—in 2012—I received my first official medical diagnosis of Autism Spectrum Disorder: I was diagnosed with Asperger’s Syndrome. This diagnosis was supposed to help me receive disability accommodations in future employment after I received my master’s degree. After all, according to the Americans with Disabilities Act of 1990, employers are supposed to provide “reasonable accommodations” to persons with documented disabilities in order to help them overcome barriers to performing a job.
Over the past 15 years, I have had about seven employers—all low wage jobs—and have mostly gone without disability accommodations—not because I don’t need them but because I’ve found it impossible in most cases to obtain them. In most of these jobs, it was a psychologically shattering strain for me to try to succeed at them and try to compensate for my learning disabilities and moderate verbal communication impairment.
As far as I can tell, one of the reasons for my difficulties in obtaining employment accommodations is that, looking at me on the surface, I appear “high functioning.” As a job counselor with my state government’s Department of Vocational Rehabilitation (DVR) said to me 15 years ago, “You have a master’s degree, you shouldn’t be working at McDonalds,” when I suggested the latter as a possible employment route. When I had my first meeting with a supervisor at a job with a medical company in 2021, she remarked—thinking she was giving me a compliment—that I “didn’t look” like I had Asperger’s Syndrome. According to her I appeared “well put together” and well spoken. However, before long, previously invisible manifestations of my disabilities became apparent to her; I quit the job after four months as the supervisor made clear she was preparing to write me up for ineptitude.
The Trump administration’s approach to Autism is part and parcel of its punitive and uncaring approach to underprivileged Americans in general, as demonstrated by its draconian gutting of an already devastated American welfare state.
Although at one point the supervisor suggested she would be willing to give me disability accommodations, the company’s corporate office refused, saying that I would have to go through the costly and lengthy process of getting a new diagnosis of Autism before they would consider granting accommodations. The corporate HR official said that my 2012 Aspergers diagnosis was obsolete because of new diagnostic criteria for Autism embodied in the 2013 publication of the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders.
However, perhaps the most important reason for my frequent failure to secure disability accommodations is that, in many cases, the willingness of employers to provide accommodations often comes into conflict with the need to maximize worker productivity in the interests of profit. Even when accommodations are officially provided, they can easily become reduced to irrelevance as supervisors feel the pressure to maximize efficiency and productivity and lash out at employees. I myself have been bullied at a previous job for aspects of my personality related to my Autism—in spite of this job being one of the few instances where I was provided with formal disability accommodations—and have seen other Autistic coworkers similarly treated.
Meanwhile, I can report that I have been employed in a full time job for the last four years with the same company, currently making per hour approximately $3.49 more than my state’s minimum wage. I work with no disability accommodations at this job and have only told one coworker that I am Autistic. Within the last year, the company has assigned me a more public-facing role in tasks especially incompatible with my Autism-related disabilities. I’m highly tempted to ask HR for accommodations—to at least minimize my work in the public-facing role—but fear rejection and unduly antagonizing my supervisor who has long faced a staffing shortage in the public-facing role.
I think my situation is emblematic of a broader problem faced by Autistic people: There is so much public misunderstanding of our condition and, in spite of some progress, nowhere near enough ways for us to advocate for the manner in which society can respect our needs.
Starvation of civilians is not an accident of war, it is a deliberate policy.
In July, major news organizations published the image of 18-month-old Muhammad Zakariya Ayyoub al-Matouq, a Palestinian child so emaciated that his bones protruded through his back, while his mom cradled him in her arms. Instead of a diaper, he wore a black plastic bag.
Some online commentators have sought to downplay the image’s power by pointing to a preexisting medical condition. But Muhammad is starving as the result of Israel’s use of starvation of civilians as a weapon of war. This is a war crime that is affecting the entire population and, based on my research, is inflicting particularly profound suffering on children with disabilities like Muhammad.
Humanitarian workers told me that restrictions on aid prevent them from bringing in special food that some children with disabilities or medical conditions need, while medical workers warned that children with disabilities are less likely to get care due to the Israeli government’s systematic assault on Gaza’s healthcare infrastructure.
In mid-August, in Geneva, I joined the United Nations Committee on the Rights of Persons with Disabilities for its session focused on the Occupied Palestinian Territory. Under the Convention on the Rights of Persons with Disabilities, governments are required to protect people with disabilities in situations of risks, including armed conflicts. The message from disability groups was clear: Governments need to press Israeli authorities to allow unimpeded, disability-inclusive humanitarian access and not leave children like Muhammad to suffer the consequences of intentional starvation.
Muhammad’s image should move world leaders to use all their leverage with Israel, including an arms embargo and targeted sanctions, to stop Israeli authorities’ mass starvation policy.
There are countless examples of Palestinian children with disabilities thriving with adequate nutrition and healthcare. In just one example, 6-year-old Fadi al-Zant, who has cystic fibrosis and was severely malnourished, was evacuated to the United States from Gaza last year and survived. Osman Shahin, a 16-year-old boy with cerebral palsy who had lost 7 kilograms, regained weight after his family left Gaza for Bosnia.
But Muhammed and other children in Gaza do not have that chance. Between April and mid-July alone, more than 20,000 children in Gaza were hospitalized for acute malnourishment, 3,000 of them severely. Starvation of civilians is not an accident of war, it is a deliberate policy.
Muhammad’s image should move world leaders to use all their leverage with Israel, including an arms embargo and targeted sanctions, to stop Israeli authorities’ mass starvation policy. Muhammad’s disability does not make his starvation less cruel or unlawful; it makes it all the more urgent for countries to act now.
RFK Jr. has embarked on policies that frighteningly resemble those of eugenicists: They seek to identify and disempower the underprivileged, they serve anti-immigrant and racist sentiment, and they embrace pseudoscience.
Charles Fremont Dight has been reincarnated in the worm-gnawed brain of Bobby Kennedy, Jr. A medical professor at the University of Minnesota, Dight hoped to rid society of its unfit members. Dight, an eccentric who lived for a time in a treehouse, wrote about these unfit people in such publications as "Increase of the Unfit, A Social Menace," and "A Proper Function of Society is to Control Reproduction." Like other eugenicists, Dight believed in stronger immigration laws to keep the unfit aliens, but emphatically not people of Anglo-Saxon "stock," out of the country. In 1933, Dight wrote a letter to Adolf Hitler praising the Fuhrer's efforts to "stamp out mental inferiority."
Eugenics, a mainstream science in the early 20th century, sought restrictive marriage laws, isolation of the "unfit" in special colonies for the "feeble minded," and forced sterilization to shield society from the cost of caring for its most vulnerable citizens. Recent immigrants with poor English, children who had what are now recognized as learning disabilities, Down syndrome Americans, and many others were at risk of being paraded before eugenics courts for summary judgment and sent off to isolation colonies. Once removed from society, the eugenicists claimed, those with better bloodlines would be freed of their burden to care for them.
Bobby Kennedy, Jr., secretary of the Department of Health and Human Services (HHS), has embarked on policies that frighteningly resemble those of eugenicists: They seek to identify and disempower the underprivileged, they serve anti-immigrant and racist sentiment, and they embrace pseudoscience. Bobby Jr. wants to identify citizens with autism and place them in some kind of registry. He ordered the National Institutes of Health (NIH) and the Centers for Medicare and Medicaid Services (CMS) to build "a real-world data platform enabling advanced research across claims data, electronic medical records, and consumer wearables," to determine the root causes of autism spectrum disorder, and to give Bobby and his team of autism falsifiers data drawn from public and private sources in violation of federal privacy and security rules. (Illinois Gov. JB Pritzker recently signed an executive order to block the federal government from collecting these data related to autism and to protect "dignity, privacy, and the freedom to live without fear of surveillance or discrimination" of Illinois residents.
Bobby's eugenics registry will succeed in stigmatizing people, especially young people, the way that eugenics surveyors stigmatized the "feeble-minded."
The HSS database, like those of the eugenicists, will be subjective and impressionistic. U.S. eugenicists built a registry for the unfit at the Eugenics Record Office (ERO) in Cold Spring Harbor, New York under director Harry Laughlin. Laughlin and his poorly trained minions assembled index cards about American families, often from a cursory glance at a person's face and carriage, to create genetic family trees. The ERO believed they had proved a huge number of people carrying hereditary disease who could be identified to be isolated or sterilized; 80,000 Americans were sterilized.
Bobby Jr. shares the eccentricities and racism of the eugenists. He cut up whale skull found on the beach near the Kennedy Compound in Hyannis Port, apparently because he likes to study animal skulls and skeletons, tied it to the roof of the family car, and drove it back to New York, while the rank "whale juice" poured into the car and onto his children. Bobby's interest in skulls may have been kindled by the work of craniologist Samuel Morton (1799-1851). In his Crania Americana Morton set forth a hierarchy of intelligence with Native Americans and Blacks at the bottom to justify their enslavement, removal, and other disturbing acts of violence against them.
Building on Morton's thesis, racist scientists and eugenicists documented lack of mental acuity among African Americans. They assigned Blacks special diseases and susceptibilities, one of which, drapetomania, led slaves to run away from cruel owners; another ordained syphilis as a "Negro disease." These racists believed that Blacks have a higher pain tolerance and weaker lungs that could be strengthened through hard labor (slavery). Bobby Jr. claims that Black people have a stronger immune system than white people and thus should receive vaccines on a different schedule. He observed that "to particular antigens, Blacks have a much stronger reaction." Bobby Jr. has said that African AIDS is an entirely different disease from Western AIDS, and he reiterates the fiction that HIV does not cause AIDS.
Another leg in the eugenicists' program was anti-immigration laws. ERO director Laughlin testified before the U.S. Congress in support of the Immigration Act of 1924 and its restrictions on admission to the U.S. of "races" considered inferior to the Anglo stock. On the basis of flawed data, Laughlin told Congress that recent immigrants from Southern and Eastern Europe were "socially inadequate," and tended to "degeneracy, shiftlessness, alcoholism, and insubordination," all of which were supposedly genetic traits. The 1924 act was easily passed signed into law by President Calvin Coolidge who believed that "America must be kept American" and that "biological laws show that Nordics deteriorate when mixed with other races."
No wonder Donald Trump selected Bobby Jr. to head HHS. Trump began his first presidential campaign commenting with conviction that Mexican immigrants were drug dealers and rapists. Trump draws on the work of criminal anthropologist Cesare Lombroso and the racial hygienists of Nazi Germany where a person's genes or bloodline determine his or her capacity for success or violence. Trump said, "You know, now, a murderer, I believe this, it's in their genes." But the Trump family has good genes, although his convictions for sex and financial crimes might offer counter evidence: "We're smart people… We're like racehorses." During his ongoing campaign against undocumented aliens and citizens with foreign-sounding names, Trump ordered white South Africans to be given asylum in the U.S., but pointedly not Afghans who fought for freedom against the Taliban, Mexicans, or any other "races."
The entire premise of Bobby's registry is the fully discredited assertion that vaccinations cause autism which is based on a retracted and discredited 1998 study by Andrew Wakefield that linked the measles, mumps, and rubella (MMR) vaccine to autism. Wakefield combed his data, weeded out some children who didn't fit, and carefully included others. Further, his research was funded by lawyers acting for parents who were involved in lawsuits against vaccine manufacturers.
Like Dight, Laughlin, and other eugenicists, Bobby lies and misinterprets data to fit his predetermined and erroneous conclusions that vaccines cause autism. In one article Bobby "claimed that the amount of ethyl mercury in vaccines was 187 times greater than the recommended limit, when it was only 1.4 times greater." He cited one study to contend that tuna sandwiches laced with mercury being fed to two-month-old babies. There is nothing of the sort in the study.
Bobby's strange mix of false science will exacerbate such public health crises as the ongoing measles epidemic as confused parents deny their children life-saving vaccinations. Bobby Jr. hates vaccines. He referred to the Covid-19 vaccine as "the deadliest vaccine ever made." The vaccine saved perhaps as many as 20 million lives. Kennedy has said that he only drinks raw milk. Doing so puts people at risk of foodborne illness, since pasteurization kills off pathogens. Drinking it may increase the risk of the spread of bird flu. Bobby wants to remove fluoride from drinking water and claims bone cancer, IQ loss, thyroid disease, and other things may result from its use. This is untrue. Fluoride prevents cavities.
Kennedy's fabrications about autism, mercury, and other topics recall the misguided work of eugenicist Henry Goddard. Goodard was the director of research at New Jersey's Vineland Training School for Feeble-Minded Girls and Boys. He opened an early clinical laboratory to study intellectual disabilities. Tracing the lineage of one of his young patients and building her family tree back to the Revolutionary War, Goddard concluded that intelligence, sanity, and morality were hereditary, and every effort should be undertaken to keep the "feeble-minded" from procreating to eliminate them from the breeding pool. His study on the "Kallikaks" (1912) used touched-up photos to show the Kallikaks as inferior creatures.
Always lurking in the minds of this MAGA government are racist scientific ideas about breeding and innate intelligence; about the evils of immigrants; and about the need to revitalize science away from rigorous hypothesis and testing toward conspiracy, pseudoscience, and eugenics. Bobby's eugenics registry will succeed in stigmatizing people, especially young people, the way that eugenics surveyors stigmatized the "feeble-minded." Perhaps the registry will confirm what is well known: that increasing numbers of people identified with autism is largely to do with increased screening for and greater identification of people with autism. There is no epidemic. But, like a good eugenicist, he has determined his conclusions before the study begins.
Happy measles, everyone! Or, as Donald Trump says, he only hires the best people.