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The Horror of Healthcare in America
It was late Thursday evening after an especially difficult day. I sat at my computer screen as I often do late into the night processing my rage and my determination into some fashion of an essay to fight for healthcare for all in this great nation.
I was especially upset this night. It was a day when the abrupt reality of the difficult road ahead to earn equal access to care for all was especially stark for me. Powerful people can be dismissive of people like you and like me. And while they may listen when listening seems valuable within their agenda, real caring and real political courage are very rare indeed.
I reached over to the coffee table for a sip of the diet soda everyone tells me not to drink so much, and my hand froze. I tried to move it. No matter what I did, my hand stayed frozen in the grotesque grip with my thumb and my index finger wedged together and my other fingers dangling without form - my hand was paralyzed. My arm felt strangely distant. My brain could not force movement.
Within seconds as I stared helplessly at my right hand, I ran through the calculations - should I call my husband? What if this is the beginning of a stroke? If I stand to walk across the room, do my legs still work? Should I call 911? What if I need tests? What if I have to pay a co-pay? What is our bank balance and when do I next need to pay rent and the rest of the bills? What if I have to miss work, right now when missing work would not be OK at all? I don't want to be a cause for raised insurance rates for my employer or my fellow employees - and I don't want my bosses running calculations on my worth based on a paralyzed hand in the night. What if, what if, what if...
My husband and I have been through this battleground before, and we have been scarred by it forever but we learned. We learned it might be better to risk death than re-enter the fray. It's a strange form of post traumatic stress at the hands of my healthcare system. Odd stuff.
I waited. After what seemed an endless few minutes, my hand just started to work again. All at once. I was so grateful. Not that my hand worked, mind you. I was grateful I had not started in motion the horror of the healthcare system in this nation for me and the inevitable bills that would have followed. I was grateful I cheated the cycle for now even if I will never know what caused that temporary paralysis. At least not until the next time, if there is one, and maybe not until it manifests in a very different way.
My decision in those 60 seconds was no different than what millions of Americans go through every single day. Some are lucky like me. The symptom subsides or the virus wanes and life goes on. But for thousands of others, the grim truth is they wait themselves right to death. And I have insurance just like so many of us do. Beyond the immediate concerns, I wait for check-ups, for cancer check-ups, for meds and for regular care by doing the same - though calmer - calculations.
The reality is we know having health insurance is not being protected in this nation. It is simply a hedge against being turned away at the door or labeled less worthy of the best care because our financial standing does not hold us in the best stead with our providers. Having health insurance doesn't protect us from financial ruin or even from being denied a life-saving treatment. It is a business arrangement in which we are in a weakened and disadvantaged position.
Yet, some of our less courageous leaders would have us believe that forcing us all to buy more of this defective product that is health insurance will actually give us "universal healthcare." Nothing could be further from the truth. Forcing us to buy for-profit health insurance simply forces us to build the profit margins for the insurance giants -- and the campaign coffers for those political leaders who support them. It is that simple and that horrific... else I would not have sat waiting alone and frightened in the night with my hand paralyzed being willing to risk whatever the next few moments brought or even far worse.
My husband always reminds me that often the simplest answer is the best one. That the shortest distance between two points is a straight line. But doing what is simple is not always what is easy. In this case, the simple beauty of a publicly funded health system for this nation - everybody in and nobody out - is the simple and right move.
And what was I writing about when my hand froze? I was writing about the 2.6 million jobs that would be created by converting to single payer. I was celebrating the wonderful study released by the California Nurses Association telling the nation that doing the right thing in healthcare is also one great way to do the right thing for the nation's economy. I wanted to tell the world that single payer - publicly funded, privately delivered healthcare - is not only politically feasible it is politically necessary.
I was helping to make the money argument that we seem to need so badly in this nation before we accept higher moral ground.
Our elected officials have a chance to be leaders or they can leave millions sitting alone in the dark doing the horrific calculations like I did. What is a life worth? We have to force ourselves to answer that question justly and humanely by passing single payer.
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38 Comments so far
Show AllI know your feeling. I just graduated college, moved to DC a little over a week ago, and started a paid internship at a quite awesome non-profit, but internships don't provide health insurance. I've been shopping around the pharmacies here to find the one that can fill my high blood pressure medication for the cheapest, and it hasn't been easy. Of course, I have not looked for a local PCP yet, since I have no insurance, and very little money. For my brother, who has Crohn's disease, it's far worse, and he owes well over $10,000 in medical bills that he can never pay, and is in fact now on Social Security Disability, along with my mom. Our nation's healthcare cannot even be called that, it's nothing but a fucking vampire that sucks out your money for all you're worth. A couple months ago, I was staying at a hostel down in Miami for a renewable energy conference I was attending, and I started talking with a tourist from Sweden while I had nothing to do. He said his greatest fear was breaking a bone while he was in America, and thus having to go to a hospital and pay an outrageous sum for treatment. Imagine that, being in Miami, and being scared not of being shot, robbed, or otherwise a victim of crime, but instead a victim of an accident, and being forced to seek treatment for it. How much longer is this shit going to continue?
How much longer is this shit going to continue?
When George Wanker Bush finishes reading the complete plays of Shakespeare, writes a critically acclaimed book on the meaning of those plays and then gives all his money to the ACLU is when this shit will finally end.
Yeah, no kidding!
Meanwhile, anyone suffering from a life-threatening bacteria or viral infection might want to visit this website: http://www.biologicalmiracle.com/index.php - it could potentially save your life.
zmann:Hi. You got to DC in time for the party. Too bad some nonprofits don't have benefits. Like your mom, I was on Social Security Disability until I became a senior. I've got to say it (since I sort of know you from your comments):watch that blood pressure. My nearest and dearest has it. About Sweden:it's one of the few places disabled people can move to and become a citizen. I once asked a guest a radio show on WBAI, my favorite, 99.5FM in NYC, www.wbai.org of the Pacifica network www.pacifica.org. Best wishes to you, your mom and your brother. I remember asking one guest who was an authority on immigration in the US:if a person is disabled by a landmine put down somewheres overseas by the US government, can the person immigrate to the US and become a citizen if unable to work? The person told me "no", have to be able to work or have income.
Whenever we travel outside Canada we take out private insurance to cover the medical costs of accidents and emergency illness. It's a necessary evil we live with. This year I'll be out of the country for several months and I was offered relatively cheap insurance for travel anywhere except the United States; however, since I'll be spending some time in the US, I was forced to buy a policy that would cover me in the US too, which cost me at least 40 or 50% more than the standard policy for Europe or Latin America or the Caribbean.
This seems like evidence enough that there's something very very wrong with US health costs, if international insurers face such a differential!
USA---"spread the pain." Millions upon millions of anonymous griefs.
-30-
I'm lucky. Last year I lost half my respiratory system due to paralysis of my left diaphragm. The damage was probably due to an impinged phrenic nerve, but since the impingement was not relieved within the first few months, the condition is now permanent. I am retired, so I did not lose work time. I have Medicare, so apart from a few hundred dollars in co-pays, the many thousands of dollars in CT and MRI scans and specialist visits were borne by the government - by all of you. My PCP scratched his head and dutifully referred me to one specialist after another: a pulmonologist, two neurologists, three neurosurgeons, each of whom dutifully gave me 17 minutes of their time, scratching their heads and jotting down reimbursement codes. As the insurance reports came in the mail, I added up the unbelievable cost of this nothingburger. Thousands of dollars changed hands as I sat there waiting for medical intervention that never arrived. Not one diagnosis, not one minute of treatment of any kind. Not one referral to a better specialist or skilled treatment facility. I proactively scoured the e-medicine web sites, solicited referrals from friends and doctors, demanded a visit to Barrow Neurological Institute in Phoenix. I filled out innumerable forms on innumerable clipboards. 17 minutes is the recommended time for an average patient visit by the insurance companies who administer our health care. Unlike auto mechanics, doctors who give up after 17 minutes earn just as much money as doctors who do not. Finally I joined our "finest health care system on earth" and gave up. Anybody who can't figure out why the American health care is so expensive and so utterly dysfunctional is simply not paying attention. We need to throw the insurance industry and 9/10 of our doctors in the trash. But do you know what we are going to do instead? We're going to fiddle with the system as though there were something in it worth preserving, and throw ourselves in the trash.
voxclamantis:I send good wishes. I have asthma as my second disabling illness (CFS/ME) and can relate to all breathing stuff. I am older. Your comment is excellent.
Sioux Rose
VOX: I noticed something similar to the experiences you relate above. When my father (then aged 86) was very close to dying, lots of medical specialists were added on. His final days on earth were little more than a series of different medical appointments all in the same day. I read that 25% of all medical costs are used to stave off the final days. There are a lot of medical specialists who cater to the fear of death by giving elderly people whose bodies are clearly giving way the illusion that with the right treatment they can go on into virtual perpetuity. (At least that was my view of it.)
Donna I have been reading your articles for some time. Wheil I am Canadian and have no real stake in the battle that goes on down there, I really wish your country gets what people like yourself are fighting so hard to get.
I believe you are truly a compassionate person. I do not really know you but from reading your articles I have to say I both like and respect you.
Good luck and Blessings to you.
What a kind comment -- thank you.
Donna Smith, American SiCKO
My brother could never get health insurance because of a heart defect he had from birth. My friend could not change her health insurance because of being on an anti-depressant for 5 months. No one else will insure her now. Another friend dropped his insurance after being successfully treated for skin cancer. What a mistake that was, as now he is uninsurable for the rest of his life.
And yet when you bring up universal health care to conservatives they scream socialism! By the way, the man with skin cancer and no insurance is a staunch conservative.
Daschle and Obama certainly dont back universal either. Too much money to be had---the Inaugeral Ball for Blue Cross/Blue Shield is an example...
With the unemployment statistics on the rise one approach would be to speak loud and clear about the dignity of going on food stamps and medicaid due to PTSD from the trauma of waking up to the visciousness of illegal wars, theft by paper on wall st. When 40% of the population finally shudders in a 'wu wei' affirmation of life, maybe the seesaw will shift of its own weight. - there would be no option other than to confirm single-payer.
In East Tennessee what is being sold to the people is nothing near what advertisments say as compared to what they really say on court record is their acceptable standards of health care. http://www.wisecountyissues.com Even the state of Tennessee ( Randi Blair, E.TN office of the hospital licensure board ) told me that "horrifying" health care is within the parimeters of The Acceptable Standards of Health care in their state by their hospitals, health department, consumer affairs board, and governor. (Virginia too) Profit Care trumps Patient Care in E. TN. Affordable health care won't do much good unless we demand a higher standard of quality care, preventative care, clean hospitals and nursing homes. MRSA SHOULD NOT BE IN OUR COMMUNITIES AND BREEDING IN AMERICAS EMERGENCY ROOMS.
That decision making process you describe is very familiar to me. Fortunately my employer offered an HSA this year, so I can at least be confident that my medical expenses are going to be a fixed price this year. What a relief to know I won't spend more than $10,000 out of pocket for health care this year.
Donna Smith:you may have had a warning,temporary paralysis. (I know you know that, but others may not.)
Any specific suggestions for what people can do in the process for getting single-payer?
Of course. Great question. Direct and clear communication with members of Congress is critical. The Leadership Conference for Guaranteed Health Care has already gathered more than 40 organizations with a combined membership base of more than 20 million people to push for single payer reform. We've hosted two national call-in days and support plans for a number of briefings and hearings to move the issue.
It also helps if citizens write letters to the editor on-line and for print publications to offer their opinions to the discourse. Call-in radio programs are another good chance to spread the word.
Others choose to pay close attention the the campaign contributions going to members of Congress from the insurance industyr. The old adage, "Follow the money," holds true as much now as ever...
and members who accept huge contributions need to be very public with that information before they impose their tilted views on the effort to reform the system.
These are just a few of the ideas...
Donna Smith, American SiCKO
Option #1 - move to anywhere in Europe, Canada, Japan - heck, even Costa Rica. They all have universal healthcare (but are about as welcoming to Americans as we are to them when it comes to immigration)
Option #2 - work for the government. While government decision makers do not want to provide its citizenry with high quality, affordable healthcare, it does want - AND PROVIDE it for themselves. I work for a state university and in addition to a pension, I have comprehensive healthcare for me and my family of 4 for just over $160 month in premiums (no deductible). The Mayo Clinic is on my plan -- it costs me $10 for an office visit, and $0 for all the thousands of dollars of tests they do on me for my annual checkup. My mother, who is self-employed, goes to the same Mayo Clinic doctor and pays thousands of dollars for the same care, plus $6,000 a year in premiums, with a $5,000 deductible, and no dental, vision or prescription coverage (like I have). My sister just now was able to get insurance after going without it for years because she had taken anti-depressants and couldn't get it. She is so happy to have the privilege of paying thousands of dollars a year for major medical coverage that basically won't provide her any actual care unless she gets a major illness and ends up in the hospital.
I used to live in France and the health care (and education, retirement, vacation, transportation, working conditions, etc) were out of this world -- I would go with option #1 if you are able : ).
well, capitalism may be bad. but socialism doesn't work, does it?
why do the rulers fine and imprison us for going to cuba?
That's why the Europeans are currently (well, mostly) embracing Democratic Socialism, sort of a combination of the two. They seem to be in much better straits then us, don't they?
I take that as a joke. You think maybe they don't want us to see how NOT scary it is? No doubt, life in Cuba is rough-- but not because of socialism, rather, because of an inhumane 40+ year embargo perpetrated upon them by our "compassionate democracy".
Universal health care can only come to the U.S. when every single corporation realizes what automakers like Toyota realized: that it's far cheaper and less risky to set up shop in Canada, where they don't have the burden of private health insurance for basic coverage. Since health insurance for workers and retirees (not the future retirees - they're going to be hung out to dry) is the largest single extra financial burden on the auto industry, perhaps they can hold their ultra-capitalist snouts and accept the fact that universal public health care will remove a huge obstacle to their survival.
Of course, HMO's, private hospitals, insurance companies and other similar corporate leeches are THE one and only obstacle. And they keep pouring money into the coffers of every lawmaker in the US, not the least of them Daschle, who's now the health care "czar" (one of Mr.O's funniest appointments).
So it's up to the masses of USAmericans to find the courage to stand up to them all and to the politicians: sit in, die in, shame them, resort to what the Argentines do and they call "escraches" (shaming individuals publicly with massive demonstrations outside their homes) or whatever it takes. The worst outcome would be that everyone will be rounded up as terrorists and shipped to prison with free basic health care. At least the seed for action will have been sown and future generations will succeed. But inaction now won't do anyone any good in the long run.
Good luck, neighbours!
Sioux Rose
DONNA: I notice you sometimes enter our forum. I wanted to pose a suggestion. Sometimes a nerve is pinched and this can lead to a bit of paralysis. I wonder if you'd consider a chiropractic adjustment just in case? A nerve pinched over the course of time can lead to degeneration of the area that's not being properly nurtured. So many people, up until recently, women especially, were so busy taking care of everyone else, they neglected their own needs. I know you posed a poignant piece on CD close to the holidays which suggested that you were facing financial difficulties, but IF you could afford a periodic massage, that would be helpful to you, too. I have no medical insurance and rely on these alternative therapies which thus far have served me well. Given all the evidence of your article, even if I could afford medical insurance, I shudder to think I'd be giving bureaucrats a huge percentage of my income so that THEY can play King Solomon in determining whether or not I would be worthy of care if and when a circumstance ensued requiring it.
Thanks for the comment. I think trying some other ways to handle physical issues would be a good idea too as often I find -- as I am sure others do -- that an X-Ray and other testing options don't prove too helpful and are costly.
Donna Smith, American SiCKO
Someone should remind this author that Obama has made his intentions about single payer crystal clear. He isn't giving the idea a high priority and is in fact against it. Keep hoping but take a look at who's been paying and controlling his candidacy and will do the same to his presidency.
And if the author really took healthcare seriously, she'd be putting pressure on Obama to get rid of the ban on Cannabis and let that plant compete in the market so that America can recover its brain cells and improve its thinking and standing power all over again.
Even a new president can change... I am aware of his stated positions now and in the past. Our current economic conditions have sure already forced him and a few hundred of his closest friends to alter their plans. I am confident they will do so on healthcare.
Donna Smith, American SiCKO
I grew up in the USA and lived and worked there until 1997, at which point I moved to the UK where I now live and work. I come to the USA quite often and so have kept track as to what is going on since then.
First let me say that the fully nationalized system here...yes folks, full-blown SOCIALIZED MEDICINE (run in fear all...oh my!) is far superior in my direct personal experience than anything I encountered when I lived in the USA. Even from just the point of view of the aftermath. My job, when I was hospitalized in the UK, was to get well. That's it. No payments, no forms, just a National Insurance number that is essentially a Social security number.
But I'm writing this comment to you, Donna and Souix and to anyone else out there who thinks Alternative medicine is far superior to conventional medicine.
What you might not have figured out is that when I am paying part of my taxes to help YOU, I sure as hell am going to raise a LOT of stink if you think you are going to get many alternative therapies through the national system!
I will press my congressmen and my government VERY HARD to only spend money on therapies that have a proven track record using double-blind tests and peer reviewed by the medical profession.
This is precisely what happens in the UK. Alternative therapies such as Homeopathy, acupuncture, and many herbal remedies are not supported on national insurance. Most of these not only have no evidence of efficacy they also have evidence that they do not actually do anything their practitioners claim.
Chiropractic medicine IS supported by the National Insurance but only for a highly limited number of conditions. I do not know, but I suspect the wrist condition mentioned in the article would be covered, but there is also another profession here called "physiotherapy" that is also covered which might offer help of this kind.
Why I am telling you this is to point out that a National Health Insurance plan will introduce a system of limited coverage no matter how much we spend because there are always people out there with more money than sense willing to buy even the strangest of 'cures'. Not all of these will come under the National Health because if you DO this then there will not be the money left over to help people who can be treated with scientifically proven methods. Literally the choice is whether you keep enough surgeons on hand to deal with emergency appendectomy or do you let several thousand people drink a bottle of homeopathic water at $20 a fluid ounce.
Do not mistake what I am saying as being 'against' you or anyone trying alternative medicine. What I am against is paying for medicine that is unproven at the expense of letting people die that proven methods could cure or at least prolong their lives.
And do not fall into the trap of believing that the perfect is the enemy of the good.
My arguments above DO NOT mean that National health insurance is a bad thing. Quite the contrary. It is a good thing. But it is not a perfect thing. It is 10 times BETTER for 90% of Americans than the current system, but it will NOT be a panacea of cures running the gambit from heart surgery to crystal therapy. Somewhere in-between those extremes there WILL be a cut.
Just keep that in mind.
If any meaningful reform is proposed by Obama the insurance companies will spend hundreds of millions,if not into the billions,on a tv campaign similar to was it Ted and Louise?
How fulfilling it must be to work for an ad agency putting out such propaganda that needlessly harms millions of your fellow citizens.
Single-payer health care, as Canada has, costs each person half as much as for-profit health care, as the USA has. Plus, all demographic health care measures (longevity, infant survival, cancer survival, etc.) get better. Plus, once governments are responsible for hospital medical services, they invest in cost-effective preventative medicine services, like inoculations, exercise programs, anti-smoking campaigns, clean syringes, etc. But, the US population would much rather make war in other nations, and give Israel money and weapons in order to kill Palestinians and steal their land. Unfortunately, you cannot afford both. At some point, the US population should politely ask that the US government serve their interests rather than serve the interests of religious fanatics building settlements outside their national boundaries and committing war crimes.
Thank you... and no worries, I do not have many dimes to drop without hope of results.
I want evidence-based healthcare -- I want care that provides me evidence that I can feel better and live healthier, to the extent possible.
Donna Smith, American SiCKO
That is interesting. But before you take someone else's word, I suggest you give it a try. I see a chiropractor twice a month and a naturopathic Dr. for acupuncture about twice a month (actually more like every 3 weeks). My persistent migraines and neck and shoulder pain, plus feeling uncomfortably cold all the time have virtually disappeared. I don't think this is placebo effect, either. I was very skeptical but decided to give it a try to get all the people off my back who kept encouraging me to go. On the other hand, I was very excited to finally get an appointment with my new doctor at the Mayo clinic who I was sure would have the answer and eagerly started taking all the different drugs she suggested -- but they only made me feel completely out of it all the time and did nothing for my migraines. So, I would have expected that if it were a placebo effect, I would have had the relief from the meds, no?
Admittedly, I go to some really amazing practitioners -- I would describe them as "healers". I don't care what anyone says - it sure worked for me!
How many times do you stupid slaves have to be told?
Wake up and rise up.
In a related area,let me inform those who have no knowledge of this aspect of Social Security.
Depending on which administration is in power and how much they want to slice from benefits,applicants[myself included]are unjustly denied disability on their first application and forced to fight their way through another application process[mine took nearly 3 years.Then most applicants [as I was] will be awarded benefits.But the dastardly hitch is,since the amount of benefit is calculated by one's earnings in recent years only,they are drastically less than the award would have been upon the first application.One is thus sentenced,if you will,then[as I am]to the remainder of your life on a below poverty line income.Without support of family,I would have had to try to survive in the streets with several serious illnesses.
How many in the US have been treated thusly? I'm sure they've kept an accurate count just as the phantom count of the homeless years ago.
I appreciate this website and the opportunity to vent,and hopefully inform.
I'm from Australia and we have a universal health care system here. It is called Medicare. Everything is free in the public hospital system for everyone - and we have lots of public hospitals! People can still opt to be treated in private hospitals for which they pay health insurance through the private health funds, but that is over and above the Medicare levy of 1.5% on income, which everyone has to pay. There is an upper limit of income on which the levy is paid. It is unusual here for employers to pay private health insurance. It is nearly always paid by individuals, costs around $2,000 - $2,500/year (single), and covers all private hospital admissions. It is subsidised by the Federal Government between 30% - 40% of the total cost. There is also 'extras' cover, purchased separately, which pays a percentage of dental, optical, allied heath services and many other things. Medicare also largely covers all medical costs, including X-rays, blood tests, visits to the doctor, prescription drugs, etc.
I'm here to tell you that this system really works quite well. Of course there are waiting lists for elective surgery at most public hospitals, but in an emergency people are admitted and treated straight away. Private hospitals are mostly for elective surgery, although some of the larger places have emergency departments. I have read about your system in America before and always wondered why you didn't have a system like ours, which is much less expensive to operate. It is well worth fighting for - so good luck!
Dear Friends,
New Mexico Legislature, opening on Jan 20, will consider passage of the New Mexico Health Security Act, a not-for-profit, single payer healthcare legislation. Copies of the bill and legislative studies can be seen at www.whatifyouknew-nm.com or at www.nmhealthsecurity.org .
The legislation would pool all premiums in a single fund overseen by an independent and transparent commission appointed by the legislature. One important argument in favor of the plan is the ability of NM healthcare consumers to have control and knowledge of the investments of their $Billions of dollars paid in premiums.
Could you point us to some sources of information on the financial stability of major health insurance companies servicing New Mexico, their investments and potential risks? We need to make a fact-based presentation on the relative risks of private health insurers versus the Health Security Act.
The New Mexico Health Security act has a strong possibility of passage in both our chambers. Governor Richardson has in the past openly sided with maintaining an insurance industry based system, but conditions are changing rapidly. New Mexico could be a trend-setter, as was the province of Saskatchewan in the passage of a national health plan in Canada. We would greatly appreciate any timely help you can lend.
Thank you. Sincerely,
Dan Gips
Thanks, Dan!
If the NM Health Security Act passes legislation, I'm going to start looking at job openings in New Mexico. This would certainly encourage me to consider moving there before I'm ready to retire.