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Health System Keeps Stigma on Mental Care
"Our family needs therapy." "My child needs counseling." "My husband and I are in marriage counseling." "I'm in therapy for an anxiety disorder."
These are among the shortest and hardest sentences for most people to utter. Last week I had to tell someone I care about, "I think you need therapy." It was hard to say and hard for my friend to hear.
Parents of children who've been in counseling or spouses who have used marriage counseling off and on for years sometimes challenge me when I say there's still a stigma about seeking emotional or psychological therapy. They say there's no social stigma, or if there is, they resolved it long ago.
Perhaps that might be true among certain professions, certain highly urbanized communities, but it sure isn't the real world in most communities I know.
Twenty-five years ago, I was disqualified from entering into the Peace Corps because I was seeing a psychotherapist. Being an advocate, I successfully framed my therapy as resulting from being a victim of domestic abuse, but really, that wasn't the whole story.
My fiance who became physically abusive had been emotionally and psychologically abusive for years prior to that, and the extent to which I allowed it reflected my own emotional history and problems.
It took therapy to bring me to mental health. But it was hard to imagine myself in therapy until my fiance became physical, and that was partly because it was hard for anyone around me to suggest it. Even getting treated required contortions by my therapist, who had to call pretty normal psychological problems by names that my health insurance covered.
It's perfectly common to hear about a political or corporate leader's heart bypass operation, their pulmonary therapy program, diabetes or cancer treatment, or even the details of their colonoscopy. But treatment for depression? For anxiety disorders and phobias? Post-traumatic stress disorder? Obsessions?
For leaders and non-leaders alike such treatments are rarely discussed, other than between close friends, in confidence, and they certainly are shielded from the public.
Thus is a taboo fed, thus a stigma perpetuated. And its consequences are predictable. Nearly two-thirds of people with a diagnosable mental disorder do not seek treatment.
The military, for all of its failings, has become visible in recognizing the problem and seeking to address it. Many soldiers fear that their careers will be jeopardized by acknowledging the need for mental health care. Will their superiors trust their leadership and decision-making capabilities if they betray their weakness?
The high rates of post-traumatic stress disorder among Iraq and Afghanistan war veterans and tragedies that are surfacing among their families have prompted the military to develop new recommendations to overcome stigmas that impede soldiers' seeking treatment.
Similarly for the rest of us, job and school applications often ask whether an applicant has ever sought "professional help for emotional or psychological problems." Even I at one point counseled a family member to get a certain kind of treatment that fell outside of that screen, fearing institutional stigmas that could haunt that person.
The health care system is a principal driver behind mental health stigmas. Rosalynn Carter, the former first lady, worked as a mental health advocate for the Carter Center in Atlanta and earlier while her husband served as governor and president. She maintains that "if insurance covered mental illness, the stigma would go away almost immediately. It would legitimize mental illnesses."
In addition to the health care system's gross neglect of mental health, fear of job loss and other consequences, stigmas result simply from a sense of isolation in our culture.
Mental health is so personal and essential to one's identity that it's hard for many people to imagine that it's subject to change, including positive change. Which means that those of us who have needed and received good mental health care should share our stories.
Bit by bit, pushing the health care system, employers, and ourselves, we can make the normal challenges of living a little bit less scary and bring the remedies a little more in reach.
Margaret Krome is a Madison resident who writes this column every other week.
© 2008 Capital Newspapers
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18 Comments so far
Show AllImportant topic. One key piece of this is parity with insurance. I have a friend who is bipolar and on three medications to control it. Her insurance allows her only four visits annually with her psychiatrist - after that, she pays in full (on her small income).
Thank you Ms. Krome.
Mental health gets neglected, partially I think, from a kind of Protestant ethic in America that "it's all in your mind" and mental health problems are imaginary, that "you should just buck up and cheer up". Mental disorders don't have an obvious physical manifestation so the assumption is that they're entirely subjective.
(Of course the Left is sometimes no better; Prozac is regularly criticized as yet another attempt by Big Pharma to brainwash the American populace, neglecting to realize that there are people who do, indeed, gain benefit from using it.)
The health care plan for the president, vice president, karl Rove and Phil Gramm must be excellent. They have enough money that they can pay for the care themselves.
Unfortunately they make no use of it. If they ever went to a counselor, they would either have the counsellor killed, or be in an asylum.
I don't know if there is "stigma". It's that mental healthcare (if that's the term) has a very poor track record.
Prozac, for instance, always has side effects and sometimes they are very serious. Even the studies the drig companies submit to the FDA suggest that Prozac only helps about one out of three people and there are independent studies which suggest it does not help at all:
http://www.independent.co.uk/life-style/health-and-wellbeing/health-news/antidepressant-drugs-udontu-work-ndash-official-study-787264.html
Prozac, for instance, always has side effects and sometimes they are very serious. Even the studies the drig companies submit to the FDA suggest that Prozac only helps about one out of three people and there are independent studies which suggest it does not help at all:
http://www.independent.co.uk/life-style/health-and-wellbeing/health-news/antidepressant-drugs-udontu-work-ndash-official-study-787264.html
I think that the government has a vested interest in having as many people diagnosed with some form of mental illness.
You cannot legally purchase or possess a firearm in the US if you have any type of documented mental health issue.
Even the studies the drig companies submit to the FDA suggest that Prozac only helps about one out of three people
Well, cripes, I must be one of those three, then.
My mama (who really oughtta know) always told me that the biggest problem with the health care system is that it's not really a health care system, it's just an illness industry.
At least we don't stone 'em or burn 'em at the stake any more...
That being said, I've seen far too many examples of people who should be getting treatment being used to keep the jails and prisons extra populated.
A bit of advice - if you know someone with a mental illness, who may run afoul of the law, it is essential to already have documentation of a professional diagnosis on hand - without it, despite your protestations, that person may be consumed by the justice system and never receive the treatment they need.
I am bipolar and I can tell you: despite recent legislation, there still isn't parity in health insurance coverage of mental health issues. If I had heart disease, my insurance would cover far more of my care.
But the biggest challenge of all that I face is the stigma and the resultant isolation. Even highly educated people in urban areas tend to recoil at either the diagnosis or the associated behavior or both. Even (former) friends. Even family members.
I'm not sure that achieving parity in health coverage will ever solve that problem. People fear the mentally ill. Fueled by unrealistic depictions in the media, Americans tend to think we're unpredictable and violent, when the truth is that when properly treated, the vast majority of even severely mentally ill people never hurt anyone.
I am a capable working professional, but I have found that I have to keep my mouth shut about my diagnosis around "normals," and pretty much limit my social contact to other people who are mentally ill. This is unfortunate, as it limits my ability to educate "normals" of my acquaintance and thus help fight the stigma. So the stigma feeds more stigma.
Most of the people in "high places" suffer from terrible mental illnesses, either undiagnosed or secretly diagnosed. One of the sources of the stigma for mental illness is the advertising/marketing industry which sells vice/useless warez on the platform of the consumer's "personal identity". Were the population to become enlightened about their own true nature/identity, this economic platform would shatter and we'd be another step closer to economic/social justice.
Do most of therapists KNOW what mental health really is? Perhaps it's much more rare than we think. ;)
Pere Ubu
Actually two out of three seem to get relief from depression but in the control group, the ones who get a placebo, it's one out of three.
The percentage of people who are not in studies but simply seeing Psychiatrists and taking antidepressants in their normal lives who feel that Prozac helps them is probably in the range of two out of three but maybe half of them are benefitting from a placebo effect.
chessgames56 asks : Do most of therapists KNOW what mental health really is? Perhaps it's much more rare than we think.
It's all a matter of "functionality". Almost any mental health condition, like any physical health condidtion, can be of differing degrees of severity. Truly, it would be difficult to find a person who is in perfect physical health, or in perfect mental health. I think there's a couple of people in Iceland who have both. But for the rest of us, it's not a yes/no on/off black/white thing. If a person gets along fine, they aren't "ill". A person can be fine, and then have a condition worsen, and become quite "disfunctional".
A problem with the stigmatization of mental illness is that there is no social pressure to "maintain" one's mental health, the way there is for physical health. Maintaining physical health is very important to maintaining mental health, and vice versa. Yet "Prozak" and "Coronary Bypass Surgery" are often taken as first steps, once a problem has been identified. Sure they may be necessary by the time the problem is identified. But as the article points out, you get your stigmas with the one, not with the other.
CHESSGAME: I like your point. Our society as a whole is pretty sick. Granted, most who post on CD have a conscience and truly care about the sustainability of our planet and human life of all stripes and colors. Unfortunately, there are many millions in the US who identify with such a strident me-first attitude, who harbor animosity for foreigners, and who therefore SUPPRESS the true flow of the heart (which is love for all humanity and Creation) that they are SICK in the spiritual sense.
Writers like Louise Hay ("You Can Heal Your Life") have published evocative correspondences between chronic states of mind and the conditions (of body) they lead to.
When our nation allows its resources to be used for the development of war, weapons & nuclear armaments, then the nation as a whole is sick. Martin Luther King called it spiritual bankruptcy. I've noticed that the pundits du jour, the experts of the hour, reflect the dominant attitudes of society; or what one savvy CD poster referred to as the attitudes of the DOMINATOR class. A dominator, like an authoritarian, could CARE LESS about others. Their world view is hierarchical, and there's little remorse for any unlucky enough to be on those bottom strata. It takes compassion and a capacity to own personal pain and from it, desire to alleviate the factors that lead to pain in self and others, that makes a truly healthy person. But you will not hear that type of thought from the likes of Dr. Phil or any of the other media sages who espouse a self-oriented, cold-but efficient rules-based set of recipes for life and pretend THAT is health.
The more eccentric I allow myself to be, the healthier I feel as it's so clear to me our nation has lost its moral compass... to go along with the crowd, to conform, to be seen as sane or healthy given what our nation as a whole accepts and tolerates, well... ONLY those who depart from the dis-ease of the land can begin to heal and become examples of a far better, nobler WAY of relating. Sane is far more than what is functional in a dysfunctional mass model!
This is an important article and I thank the author. Having studied academic psychology and related fields for over 30 years, I believe the stigma surrounding "mental illness" involves several profound misunderstandings. For example, a rampant dualism exists where people believe the mind and brain exist as parts of separate realities, making it difficult for people to grasp that "mental problems" are actually biological imbalances. Similarly, there's a related belief that these problems having something to do with a person's "character" (in this case a weakness of character), which makes them somehow responsible for biochemical events over which they have very little if any control. This misunderstanding is related to the belief that we have tremendous amount of will power or control that should allow us to change our behavior and thinking in order to overcome our problems. But there are many aspects of our brain/mind over which we have no control. There are other reasons beyond these, but the stigmatization is real and many suffer as a result.
Some of the comments above regarding prozac are misleading. It may be true that prozac doesn't work for everyone with depression. However, this is vastly oversimplified because prozac is one of many distinct types of antidepressants (which target different form of neurotransmitter imbalances) and there are many different forms of depression (resulting from the imbalances). This is what one would expect in a system as complex as the brain. In any event, if a drug like prozac doesn't help, it remains quite possible that one of the many other anti-depressant will prove helpful. Unfortunately, this diversity of treatment options is not well understood by many doctors (excepting psychiatrists) and their patients, and insurance companies are not always accommodating. But the main point is that much more help is potentially available if people have the expert advice and persistence to find the best drug for their particular problem.
This is not to say that all forms of depression require anti-depressant medication. Behavioral and environmental changes can be helpful in some cases, as long as the person can change their behavior and environment. But again, in other cases this is beyond the person's control and medication is needed
in 1973 i applied to drive bus for the city of detroit. i took a written test and then had an oral interview. at the time a few brave women drove bus there. after not having been given a physical, i received a post card that told me i had failed the physical portion of the test.
after taking legal action, i learned that what i had done to fail the physical portion of the test was to be diagnosed schizophrenic in a state hospital in 1969. this was a federal court case.
the first judge had a heart attack. i needed a job to support myself, and the lawyers for the city kept delaying everything. (one saying is that justice delayed is justice denied.) the first judge ruled that i had a cause for action. after a few years and a couple of jobs that i got by lying--the real lesson of this experience--the next judge ruled that the city had been misreading its own civil service rules and that i had a right to appeal the medical decision that had been made by a doctor who never met me.
then came the damages portion of the lawsuit. it went back to a city referee. the city decided that since they couldn't tell whether they would have hired me back in 1973, they owed me no penalties or back wages. their lawyers did everything they could to destroy my reputation and sense of character and dignity during all the cross examinations.
how is this stigma? just before my 21st birthday i was forever branded as schizophrenic and only got jobs by lying about it. then when the stress of the job became too much, as i grew paranoid, i lost jobs. now i'm on disability, because the last time i got paranoid and the boss tried to get me to back down in a dispute i was having with another employee, he sent me home and then fired me over the phone. xerox was the best employer in dealing with the problem, but that fell apart, too.
what can anybody do to help? get acquainted with some mentally ill people. we're generally gentler than the average bear. there is a clubhouse movement in which member run clubhouses provide an atmosphere that encourages psychosocial healing.
People generally think that emotional or mental disorders can be taken care of if the sufferer just applies a little self-disciple. Afterall, there's nothing that shows on a X-ray, is there? I've even read blogs by medical students that show nothing but contempt for "weak" people who could be well "if they chose to be." Not the way it works but on top of that popular misconception is the insurance company's reluctance to take on disorders that might take years to treat. Frankly, if you suffer an emotional disorder and you're not rich, you're pretty much on your own.
health system keeps stigma on mental care